Daniel Cardone, an Australian film/television producer & director living & working in San Francisco, was recently matched to me as a subject for the three to five minute HIV/AIDS survivor's story film documentary he has been commissioned to direct as part of a compilation of 15 to 20 short films of various genres that is now being called The HIV Story Project.
Jörg Fockele, a German film/television producer & director who is Executive Producer of the project, was introduced to my story when I met him as a youth liaison member of the Board of Directors of Bay Area Young Positives, Inc. He was searching for youth to profile for the film project, but was coming up short with the membership of BAY Positives and the clients of Larkin Street Youth Services, Inc. Assisted Care/After Care.
I did what I could during the conversation between Jörg and myself to advocate as well as I could for a focus on youth-aged subjects for short film exposes, but we were running into an obvious brick wall. That's when Jörg asked me how it came to pass that I had been associated with the project.
I gladly explained that Derrick Mapp, an HIV Health Counselor and L.I.F.E. Institute Facilitator from The Shanti Project, had told me of the Project and was immediately moved to get me involved either in a development capacity or as a short film subject. Derrick incubated the original idea of a short film compilation commemorating the 30th Anniversary of the emergence on the scientific scene of the "Human Immunodeficiency Virus (HIV)" as a nominal spoken word diagnosis for the then popularly known "Gay Cancer."
Then, sitting there at an empty desk in the back of the BAY Positives' office(s) with Executive Director Curtis Moore, MPH (a dear, dear friend of mine, as well as one of my most distinguished professional colleagues) at my side and Jörg Fockele sitting across from me, I downed my mask and recounted my story of disease, drug dependency, delusional psychosis, and just short of death, disfigurement, etc. Jörg was stoic in his reserved response to my story, and in a very unexpected matter-of-fact sort of way, he confirmed Derrick's assumption, "Yes, you'd surely make a decent subject for a short film. I'll have to see if I can find a director who is up to the challenge." I, in turn, smiled in delight and then just waited to discover who he c/would find to direct me in my own short film documentary!!
Of course, in light of all the anticipation of knowing that I would soon be collaborating on and starring in a documentary short film about my climactic curtailing and confounding of my desolate doom in a destitute room: a slovenly studio begrimed in blood, urine and other gross indecencies of death at the door, I eagerly awaited the opportunity to meet my director.
More so however, I eagerly anticipated the opportunity to broad cast my nevermore nefandous net to work my story through communities of survivors: a story of a reluctant rebounding, a refusing at first of the miserable misfortune that was meant to map out my unfathomably forlorn future of disconsolate discomfort and disdain, to reclaim courageously, confidently, and above all conspicuously my right to life well-lived.
Thus, in waiting for eventual contact with the film director assigned to document my story, I went ahead and proclaimed to the world that I was going to be a star. Short of posting the news to my blog for all the world to see, as I'm doing now, I've told everyone I know that I am going to be featured in a short film as part of The HIV Story Project. And just in time for me to begin to substantiate my claims to stardom, Daniel Cardone has entered my life as a true Godsend!
The following text is taken directly from my most recent email to my documentarian, regarding our struggle to find a logical link between the performative spoken-word aspects of the excessively loquacious, prosaic pedantry and pomposity of my creatively written exposes or essays (or whatever you'd like to call my boisterously shit-for-brains, blabbering behemoth of a blog?) and a certain naturalism of the cinematic narrative.
Yesterday evening, after pondering further the myriad of possibilities for juxtaposing the performative spoken-word with stoic straightforward naturalism in film, I realized that the production dates that Daniel had proposed to me perfectly coincide with my one-year anniversary of sobriety. I realized also that a speaker's visit to Ferguson Place, my Recovery & Rehabilitation House (spotlighted in previous blog entries) was long overdue and that one could easily coincide or conjoin with a community celebration in honor of my "WATCH" (i.e., my achievements and accomplishments since first establishing my sobriety a year ago).
Below, you will read a very intimate depiction of Ferguson Place, as well as a downright dutifully dramatic portrayal of my personal experiences disclosing my disfigurement and disease(s) to my community there. In writing this email and sharing it here as a blog post, I have no intention or desire of breaching confidentiality clauses or the confidences of my confidants there. I can only say that I intend with this presentation of text to pay homage in a very real and honest fashion to my friends and family at Ferguson Place. Enjoy the read!! Thus, I quote:
Let's see.. What happens/ed at my Recovery House?
Well, Ferguson Place is a Triple Diagnoses Residential Substance Abuse & Mental Health Rehabilitation & Recovery House for people living with HIV/AIDS. To graduate from the program, one must transition successfully through four phases:
a.) ORIENTATION PHASE: a two-week in-house lock-down usually meant to empower the recovering addict to recover completely through the withdrawal of most illicit substances and to attend to medical and psychiatric appointments, putting their schedule into place for the subsequent three phases;
b.) PHASE ONE: the recovering addict can only attend medical and psychiatric appointments on their own; at all other times, s/he must be accompanied by a PHASE TWO or THREE buddy to all social activities and out-of-house recovery meetings (including 12-Step);
c.) PHASE TWO: INDEPENDENCE = recovering addict (usually after one month of in-house semi-lock-down recovery) can leave the house solo as s/he pleases but only to pre-approved recovery-related appointments and social activities. The purpose of this phase is to prove your ability to maintain sobriety on your own through near independence, while demonstrating that you are able to be relied upon by other housemates in lower phases to accompany them to appointments and social activities;
d.) PHASE THREE: TRANSITION = During this final phase, the recovering addict is meant to focus all of their time on maintaining their recovery and health regimens, as well as to devote concerted effort toward the process of transitioning into short-term to long-term co-operative Baker Places, Inc. sober-living housing. During PHASE THREE, recovering addicts/residents/clients are expected less to accommodate to the needs of their housemates and more to focus on their own individual transitional needs.
During these four distinct periods of progressive recovery, the client/resident partners with their primary counselor to set their weekly schedule of mostly recovery-related activities. Primary Counselor's are all extensively trained in substance abuse recovery, mental health disorders and their psycho-social treatment, and HIV/AIDS health promotion and advocacy.
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With the primary counselor's guidance during ORIENTATION PHASE & PHASE ONE, the client/resident sets the following "PLANS" for their time in residence at Ferguson Place, as needed:
a.) RELAPSE PREVENTION PLAN: a step-by-step worksheet with numerous questions related to trigger identification & monitoring, and exploration of safety/sobriety response tactics that the client/resident would use ultimately to prevent relapse. In this plan, you also define the repercussions to any unexpected relapse, including demotion from your present phase, one-week lock-down, urine test, properties search, etc.
b.) HIV/AIDS HEALTH PROMOTION PLAN: a progressive plan meant to augment one's HIV/AIDS HEALTH PROMOTION practices through regularly scheduled appointments with specialists, any necessary additional appointments to follow-up on important HIV/AIDS health related issues, and prescription regimen adherence. In this plan, the client/resident defines the requirements s/he must meet to eventually hold their own meds; otherwise, meds are kept locked in the main office and are monitored and administered under staff supervision. The purpose of this plan is to optimize one's HIV/AIDS Health through weekly rehabilitative activities during the entire length of stay at Ferguson Place, with the hope/expectation that the client/resident would maintain the activities, therapy, psycho-social and prescription regimens well after they leave the program.
c.) MENTAL HEALTH REHABILITATION PLAN: much like the RELAPSE PREVENTION PLAN, this plan starts from a comprehensive fill-in-the-blanks worksheet which challenges the client/resident to define the triggers of symptoms of their mental health defects or disorders. The Primary Counselor offers general guidance and community health education about the client/residents' specific mental health disorder(s) and suggests to them avenues for ongoing treatment needed to maintain mental stability through difficult and challenging times (especially as their mental health is integrated with their substance abuse disorder).
d.) TRANSITION PLAN: This is the final "plan" that a client/resident completes, only after having defined their day-to-day psycho-social & medical treatment structure. This plan is meant to be introduced and initially adopted during PHASE THREE of the program, challenging the recovering addict to devise a three month schedule of recovery and rehabilitation-related health promotion activities that they would follow once they have graduated the program. This plan often has ulterior foci, including vocational education development, financial planning, residential/housing planning, and recovery maintenance.
The first plan listed: the RELAPSE PREVENTION PLAN, is the most important and often overrides the stipulations and expectations of all other plans, for the simple reason that RELAPSE DURING RESIDENCY is taken very seriously (albeit, less seriously than I would have liked!!). Client/Residents are only permitted TWO (2) relapses during their residency at Ferguson Place, and with each consecutive relapse comes more severe repercussions.
Client/Residents sign an universal substance abuse testing release, granting any member of the Counseling Staff to test all residents for the presence of illicit substances (including everything from alcohol to amphetamines, from barbiturates to opiates and other narcotic substances) in their urine at any time of any day for any reason or under any suspicion of use whatsoever.
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Ferguson Place houses a total of 12 recovering addicts with HIV/AIDS and mental disorders on a rollover basis, meaning individual addicts enter into residence at any time that there has been at least a two day vacancy. While I was a resident for three months at Ferguson Place, from July 14 (Bastille Day) to October 11, 2009, I saw only five residents graduate the program, not including myself. Evidently, the program was much more difficult to maintain for others than it was for myself.
In total, I saw 25 residents enter the program and 19 leave before they had graduated the program, either due to relapse, or psycho-social tensions in the house, or because they simply felt that they were ready to move on. Across the board, every resident of the house who was unable for whatever reason to graduate the program, left only to relapse within two to three weeks (usually in much less time).
As for the graduates, we are all invited back twice a month for alumni activities, where we can keep a pace of each others' achievements (or failures) at maintaining sobriety. I've counted four graduates that I know of since my residency at Ferguson Place ended who have relapsed. The sobriety and health maintenance success rate of graduates of Ferguson Place is somewhere around 7 to 1, success to failure (for lack of better phraseology), I would estimate. Which, I believe, are outstanding figures.
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Ferguson Place is like a second home to me: home away from home. The veteran Counseling Staff there and the alumni I still have relationships with are like family. They play a significant role in helping me to sustain my sobriety, because I know that no matter what happens (sobriety or none, recovery maintenance or relapse at any time), I will be accepted there with love and admiration, compassion and care, sympathy and a strident strict hand of accountability.
My individual experience at Ferguson Place was quite very unique. I arrived there on July 14, 2009 at around 11AM in the morning with my mask tightly taped to my face to completely cover my forehead flap and nose. I remember, everyone made a point to introduce themselves and to start some semblance of a conversation with me, even though I was terribly nervous.
And each new person I met brought to my attention in their own time the fact that my mask was making my glasses fog up, as it usually does when I'm sweaty or the tape is loose. Most of the residents there were kind enough to give me permission to take it off, but I had previously planned with the staff there to set aside a dinner plate, skip the meal with everyone in the kitchen, and to wait to unveil myself until after dinner during mandatory evening group.
I was my normal gregarious, outgoing self (just an understandably tense tangle of nervosity, with a mask on!) interacting with everyone one-on-one as I could; however, I didn't discover true, absolute, total comfort and acceptance of my uniquely tragic, terrible but immensely beautiful blessings of circumstance and survival, until I sat down with the entire group of residents and staff to begin to tell my story. My voice was cracking; tears were welling up in my eyes, but I just took a deep breath and committed to being 100% honest.
I told them about my accident, moment by moment; about my hospitalization and reconstructions, day by day, month by month; and I told them about the taut tight suspension cord I was delicately stumbling back and forth upon in pause, recollection and relapse, waiting either to fall again to my miserable demise (i.e., death by meth!!) or to continue onward to the other end of the tight rope, as a faithful master funambulist would do, to step square-footed in stable surety onto a platform miles high, where peace, serenity, self-acceptance and resounding love of others reside.
I expressed to them at that moment that I was standing at the center of a bowing, wickedly imbalanced tight rope, reaching in their direction for a helping hand. I told them that I could not live in residence with all of them for three months with a mask on all the time. It would have been unfeasible. How would I eat? How would I shower? How would I breathe when I slept? It was necessary for my safety and my success at recovery that I be accepted into this household without my mask on.
I admitted openly and without any shame whatsoever that what they would see behind the mask would surely frighten them.
"I'm grotesque.. a monster; however harsh or sad it may sound, but I ask you... I challenge you to look beyond the disfigurement and inside of my deep grey eyes or into my crooked half-smashed smile, where you'll inevitably find resounding, remarkable beauty," I told them with utmost confidence and courage.
I told them in true faith of my own pride and potential, valor and value, "Just try. Just look. Inside. Deep Inside, and you'll find a beautiful young man who's just starving for love."
That's when I deliberately dipped my fingers behind my ears to untangle the cords of my mask from my hair and began pulling it off my face. I peeled the tape from my face that was securing the mask to my nasty mutant double-nub, single-nostril nose, and slowly dragged the mask along a horizontal directly in front of me, still blocking my face from view.
Then, "VOILA! A la Française! Quel dramaturge que je sois! Voici my quasi-moto mouth and flagrantly flagitious, nefariously nasty nose." I had those lines memorized, as if to cap-off my performance with as much of a shock of language as of sight. "Happy Bastille Day!" I said, "I hope you'll have me."
One by one, each of the staff and residents there in my audience briefly stumbled through a silent pause of shock and trepidation, and then one by one each in his own time, curled their lips into broad outstretched smiles. All I saw was a small throng of floating tooth-filled tender smiles.
Someone who would become a very close personal friend of mine: a heroine addict with a three year old daughter in foster care, raised her hand gently, bashfully from her lap and asked politely, "Matthew, do mind if I say something?"
I smiled back at all the smiles smiling at me, and nodded in her direction permission to go on.
She continued, "You might hear this a lot. I don't know. But, really, honestly, to be brutally truthful with you... and I don't mean to diminish your story or your pain, but you don't look half as bad as you make yourself out to be."
Of course, I had heard that before from kind, courteous paid professionals, but never from a real person. And never had I witnessed an entire room full of people adamantly affirm her observation with hugs, kisses, embraces...long, thoughtful, sincere embracing.
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That experience... my welcome to the world of Ferguson Place, to the world-at-large... was pivotal in my transition out of addiction and into good, sober health, because it was only then, in witnessing the immense impact that my story had had on this small group of strangers, that I realized that all the politicking my pious, plaintive, yet cheerfully cynical and lugubriously lonely priest had preached to me was true... Truer than true!!
Ever since first passing by my cordoned-off curtained corner of an obtrusively unobstructed and open HIV/AIDS hospice hospital ward where I wailed away the whys and wherefores of my worrisome woebegone and weary unwelcome melancholia, my priest has preached to me of our pathways toward purpose, piety, and perfection as ultimately imperfect invalids in the eyes of the Lord.
With the audience, the friends, the family I had found at Ferguson place, I realized that all the merry mentioning of mankind's mighty miracles by my propitious priest was in fact not forlorn unfortunate fallacy, but pure untethered truth! I caught a clear glimpse of veracity in that very real instance of courageous communing.
I began to believe wholehearted then that holy hubristic happenstance looms over we the lowly licentious laymen only to transmogrify us as demonic lookalike leftover lovers of life,... as admonitorial addicts who have through hyper-tragic trails and tribulation taught themselves to be teachers above all else, community leaders or heuristic heroes to the still hungover and high.
And that truth, revealed before me in this breech backward birth of brotherhood between a garishly gruesome ghoul of a boy and his blind-sided brethren, painted my pathway and purpose toward a transmundane telling of my tragedy-turned-triumph testimonials.
Just then, I realized that my definitive purpose in the world, the purpose for which I had all but almost given up an aimless search that defined every waking moment of my yuck of youth and muck of manhood, is to share my story with the world in whichever way I could.
I would for thence onward broad cast the calamity, capitulation and comeuppance of my story through tender telling in any media and any form, so that I might ultimately save others from such sufferance, such mistakes and misery, mindflux and mayhem!!
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There! Enough garrulous gab from the so-grotesque-he-makes-you-giggle gay boy!! Consider these past paragraphs petty practice and preparation for my sumptuous sophist spoken words of wisdom we'll frame in film for the future.
Back tracking... Besides the telling of my especially serendipitous story of survival to a group of strangers turned family in an instance of wonderful welcome, for what other reason could I reason myself to be rightfully removed from the common clientele of this Recovery House?
Well, unlike most other client/residents, I came to Ferguson Place with much of my mental health and substance abuse treatment already lined up and scheduled. I would have advanced to PHASE TWO directly from ORIENTATION PHASE had I not suffered a severe withdrawal-related anxiety attack and fainting spell by throwing a riotous temper tantrum after only a week in the house.
I was convinced that I would not be accepted by the folks there because of my disfigurement and that none of the residents or staff would ever be able to grapple themselves into an intimate enough understanding of my addiction, my disease and my experience(s).
So, in light of my hospitalization due to mental instability and to my general unease and discomfort with my position in the house, my Primary Counselor decided to extend my ORIENTATION PHASE by four extra days.
This was challenging for me to accept, so I immediately submitted a Grievance Report to the Program Director asking for a new Primary Counselor. The two of them met with me. Speaking very openly, honestly, and with compassion, they told me how much they cared about my success in the program and how much they worried that the instability I exhibited could be endemic of an underlying doubt or insecurity about my sobriety, I was easily convinced that they had made the right decision.
I accommodated, obeyed, followed the rules to a tee the rest of the way and was in the end a model resident, building very strong, intimate relationships with many people there, most importantly with my Primary Counselor and the Program Director.
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As for your question related to the frequency of speakers' visits to Ferguson Place to tell their success stories in sobriety, I'll answer by saying that during my three months as a resident there, I was audience to two alumni speakers. Both individuals had incredible stories to tell. I got to know them well.
Also, exactly three months, one week and two days after having graduated the program, I myself went to Ferguson Place to present the story of how Crystal Meth and HIV/AIDS had literally destroyed my life. I went there to share the story of how I rose like a phoenix from the hot embers of the hearth that resides at the core of this amazing place of transition and have gone on to achieve full and complete reintegration into society, to achieve great success in my sobriety, in my personal and professional life, in my HIV/AIDS and mental health rehabilitation, etc.
To be honest with you (since we are at that point now already in our acquaintance), the ultimate reason I went back to Ferguson Place after I had achieved the minimum six months sobriety to speak there was to reintegrate into the community, to take off my mask(s) for a new audience of would-be could-be friends, and to reclaim my proper place at HOME.
And in fact, the speaking engagement definitely worked in my favor; for a month and a half afterward, I would regularly stop by Ferguson Place for visits without my mask on to interact with the new and old friends I had made there, and BOY!! WAS MY IMPACT ON THESE PEOPLE IMMENSE, OR WHAT!!??
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To sum things up in brief... Ferguson Place should be entirely accommodating to me celebrating my WATCH (i.e., one year anniversary of sobriety) at the house after speaking to the residents there and sharing my amazing story with them. We'd have to get special permission from each individual who might appear in the film as audience members.
If we do this, I would plan on inviting all of my closest friends and providers to bear witness to my achievements and to testify as well to my accomplishments, to join in the celebration as audience members. All I have to do is talk with the Program Director of Ferguson Place who is a very close friend of mine to schedule my speaking engagement for Wednesday July 14, 2010, and I'm sure she'll be excited to support the cause.
One potential snag in the plan could be that Wednesday night's from 6:15 to 7:30 at Ferguson Place, is usually reserved for a mandatory meeting between the Program Coordinators and the Residents. What's called "Client Council" is a venue in which residents can contend with any psycho-social and interpersonal issues that might be negatively impacting the community.
Also, if there have been any relapses or phase advancements by client/residents during the previous week, time is allotted to process these milestones as a group. But I don't see why we couldn't organize to have guests arrive at around 7:30/45 to proceed well into the evening with my celebration and the filming. I'll definitely talk to the Program Director pronto!!
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WOW!! What a terribly loquacious long-winded rambling about nothing but trifling tedium. I hope you don't mind how I've gotten carried away in this prosaic escapade of unequivocally illusive eloquence and pedantry.
Like I said, consider it all practice and preparation for my spoken-word narrative for the film. Tell me if anything I've written strikes a cord with you, or if it strikes a nerve!! Either way... I need to bridle my "boisterously babbling behemoth of a" brain, and learn to trim up the curvaceous corners of my ultimately square head.
Read in peace and in pleasure... I hope all this typing to which I've so tentatively (or should I say, tenaciously??) tended tonight (and into Thursday morning) treats you tenderly and touches your heart. Be well, and write soon.
Regards,
Matt(e)o | QHereKidSF
Matthew D. Blanchard
San Francisco, CA USA
[MDB2010.06.24@09:59PST]
